Wednesday, February 16, 2011


After the last few days of emotionally struggling with the ups and downs of chemo backlash, it hit me like a ton of bricks.  Either I need to seek therapy, or find an outlet.  Talking does wonders, but it can only go so far, many people I speak to are amazing at listening, and giving me strength but sometimes I need more.  That being said, nobody can fully grasp the turmoil that is my life other than another parent going through the same ordeal. Ding! Ding! Ding! we have a winner!  I found myself an online support group.  Why I haven't looked into this months ago is beyond me, many of these people have either been through this, or are going through this, all at different stages of treatment.  They understand completely how sometimes this disease can steal your voice, how you feel like you're falling down the rabbit hole the way Alice did. Eureka they get it! 

Brinley has been struggling this week.  She's been nauseated, and sore from the vincristine.  I can no longer give her codeine because she vomits it back up with vengeance.  I've spoken to her doctor at the clinic concerning her pain medication and they have other options...morphine, or Oxycontin.  I'm hoping that maybe Brinley will be willing to try pills instead, that way we can stick to the codeine, and not have to be so aggressive.  I hate seeing her in so much pain.

In other news, I've had some issues with Carter being bullied at school.  Well not school exactly, on the bus.  Lately he's been a target for some nasty comments and mean jokes, one child went as far as wrapping a rope around his neck.  I've been very aggressive in taking this to the school, I have enough to worry about as is, I don't need my son coming home in tears because the kids are mean, or hurt him.  I'm happy to report that his teacher handled business today, and Carter came home very happy and upbeat, claiming "no bullies on the bus today".  Thank goodness for that!


  1. Glad you found the list! It is a huge help when people just get it. Mimi had issued with meds never making it down, one of the nurses suggested Lorazepam and it worked wonders for her. We also figured out liquid was always worse than pills.

  2. I second Kat - glad you found us!! Hoping, hoping you figure out the best way to make Brinley comfortable - whether it is a different med, or a different way to take meds. Best of luck