7 months and 2 weeks. She's done it, she's in maintenance. Today I put my brave mommy face on, I smiled through the tears of joy and squeezed my baby tight, she has hit another milestone in this long journey. I cannot believe that we're here, looking back I always knew we'd make it, but the reality is setting in and it's overwhelming.
I am so grateful for the people in my life, for the friends and family who have given us unconditional love and support from day one. I am amazed by this little 4 year old girl, who has taught me more about life in 7 months, than I have learned in my full 28 years of life. Brinley handles her reality with such ease and finesse that I'm often left speechless.
Things I have learned:
1. There is never enough pepperoni, spaghetti, hot dogs, or milk in our house when dealing with a 4 year old on steroids.
2. No milestone is too small
3. Cancer does not define Brinley
4. My daughter has to ingest medication that I have to wear gloves to handle
5. My son is a very compassionate protective human
6. lemonade from lemon's/silver linings do exist
7. Sometimes all you can do is laugh
8. I can learn, adapt and cope at the blink of an eye in means to keep positive.
9. My husband is a phenomenal man and father. He keeps me sane.
10. Cancer gives you perspective
I would love to be sitting here saying that Brinley's journey is over. But it's far from over. We have 2 years of maintenance left before she is off treatment. However reaching maintenance is a huge success. The brunt of the treatment is over, the lumbar punctures are now 3 months apart, and she will only get doses of vinecristine once a month. There is oral chemo to be taken at home, as well as methotrexate, but we're down to the nice spaced out monthly visits.
It couldn't have come at a more perfect time, summer is around the corner, Disneyworld is a bit over a month away, and I feel like I've had a piano lifted off my chest. Time to regroup, refocus, and heal.