|My boys with their shaved heads|
I called my mom crying because, honestly how much more can I take?
We arrive at the hospital at 8am and the nurses access her IVAD, flush it with saline (which according to Brinley "taste yuck"), and draw blood then they send it off to the lab. Around 9am we see our Dr. and go over the weeks events (this is where my charts come in handy). Then we wait for the LP...usually scheduled at noon. It's a long day, thank goodness "the beach" is there to pass time or else Brinley would be going stir crazy. It even seems longer if Brinley isn't well, and then all she wants is to cuddle and sleep. Usually her LP's go very well, but I have seen my daughter go under anesthetic 8 times and it doesn't get any easier. My heart just aches watching her little body go limp and they shoo me out of the room. The LP takes about 40 mins, enough time for me to grab lunch, read a few chapters in my book then head back up to oncology before she arrives back. After ALL of that she's usually good to go home, they check her vitals, and de-access her IVAD. Then we go home. This week I was happy that her personality didn't, she was still bubbly, fun and very old diva Brinley.
|This was taken the day Brinley went into the hospital for being "sick"|
before she was diagnosed.