That being said I'm kind of frustrated with the situation. I told the nurses on Thursday how she had been acting the prior week, and they never mentioned that if she was showing signs up fatigue that they would transfuse until today. So had I known that I could have gotten a CBC, and we could have given her blood products, and we would probably be able to go ahead with day 29 today. I blame myself because I'm usually neurotic about these things, and knowing very detail and what to do. Part of me thought I should call if when she was acting so sick, but she didn't have a fever, pain, cough, runny nose, constipation, diarrhea, any of those "must call in" signs. She was just very very tired, and "out of it". So now I face the anxiety of day 29 all over again, hoping her counts go up enough to have her weeks dose. I know this was to be expected, but it's one thing to try and mentally prepare, and another thing to actually have it happen to you.
|Reading a book with Dad.|
We're very lucky to have daddy
with us today. And lucky him, because
he gets to come back next week too!