This may be brief, but it may not, I never know until I start typing.
Yesterday was Brinley's last doxorubicin dose (yay another last to add to my list) and she is handling it very well. Of course there is a new drug on board to help with that, and I will write about that in a bit. We haven't had any blood counts done for 3 weeks, but she will go in on the 14th for counts, and if she is where she needs to be they will start her ara-c (cytarabine) cyclo (cyclophosphamide),TG (thioguanine), and the IT MTX. So hopefully she will be ready to go.
I had a discussion with the Dr. yesterday about Brinley nausea, turns out the zofran isn't working, even when I stick in a dose of gravol in between the zofran, hours after it's been in her system she's back to the toilet vomitting up a storm. So Brinley's Dr perscribed nabilone or cesamet (same thing). Nabilone is chemically related to marijuana and belongs to the class of medications called cannabinoids. It is used to treat severe nausea and vomiting in people undergoing chemotherapy for cancer treatment. It works on centres in the brain to reduce nausea and cause sedation. So I gave Brinley her first dose at 5pm (it's suppose to be give before bed, but I don't give her any new medication without a chance to observe in case of reaction) Oh boy did I get a observation, Brinley was dizzy, and giddy, and talking a mile a minute with the odd giggle fest break. But once the high wore off she could barely keep her eyes open, she still has a bit of the effect this morning, but she is not throwing up and that's all I care about.
Maybe I should be more upset about this, but I can't really say that I am. At this point I'm willing to give her whatever the doctor says that will make her comfortable, being upset about it won't change the outcome or help Brinley feel better. I just have to roll with it and try and find something funny or happy in every situation.
Way to go, Brinley, your last doxo dose! Don't worry , Be Happy and keep smiling , Moe !!
ReplyDeleteLove to all!
A lot of children have had help with this amazing med to keep them
ReplyDeletecomfortable. The pros - , it works, Brinley is smiling, she had a good sleep, you also had a good sleep, she isn't feeling yucky, so that makes
you happy too, so go with it Morgan, you smile too.
I am also happy this was her last dose of the doxo though.
Another milestone...have a good day.....