Hello all!
This may be brief, but it may not, I never know until I start typing.
Yesterday was Brinley's last doxorubicin dose (yay another last to add to my list) and she is handling it very well. Of course there is a new drug on board to help with that, and I will write about that in a bit. We haven't had any blood counts done for 3 weeks, but she will go in on the 14th for counts, and if she is where she needs to be they will start her ara-c (cytarabine) cyclo (cyclophosphamide),TG (thioguanine), and the IT MTX. So hopefully she will be ready to go.

I had a discussion with the Dr. yesterday about Brinley nausea, turns out the zofran isn't working, even when I stick in a dose of gravol in between the zofran, hours after it's been in her system she's back to the toilet vomitting up a storm. So Brinley's Dr perscribed nabilone or cesamet (same thing). Nabilone is chemically related to marijuana and belongs to the class of medications called cannabinoids
. It is used to treat severe nausea and vomiting in people undergoing chemotherapy for cancer treatment. It works on centres in the brain to reduce nausea and cause sedation. So I gave Brinley her first dose at 5pm (it's suppose to be give before bed, but I don't give her any new medication without a chance to observe in case of reaction) Oh boy did I get a observation, Brinley was dizzy, and giddy, and talking a mile a minute with the odd giggle fest break. But once the high wore off she could barely keep her eyes open, she still has a bit of the effect this morning, but she is not throwing up and that's all I care about.
Maybe I should be more upset about this, but I can't really say that I am. At this point I'm willing to give her whatever the doctor says that will make her comfortable, being upset about it won't change the outcome or help Brinley feel better. I just have to roll with it and try and find something funny or happy in every situation.
Way to go, Brinley, your last doxo dose! Don't worry , Be Happy and keep smiling , Moe !!
ReplyDeleteLove to all!
A lot of children have had help with this amazing med to keep them
ReplyDeletecomfortable. The pros - , it works, Brinley is smiling, she had a good sleep, you also had a good sleep, she isn't feeling yucky, so that makes
you happy too, so go with it Morgan, you smile too.
I am also happy this was her last dose of the doxo though.
Another milestone...have a good day.....